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White Paper : National Rare Disease Policy

White Paper : National Rare Disease Policy

Dua Consulting’s Sr Advisor Dr Rajen Ghadiok was a speaker at the USISPF Virtual Roundtable “Rare Disease Policy: Provisions to Enable Institutional Donations”. The discussions further led to a White Paper by USISPF for which Dua Consulting was a knowledge partner. This paper provides insights and recommendations to address some of the patient access gaps in the National Rare Disease Policy 2021, primarily in terms of how to ease fund flows and make more metrics driven.

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